{"id":4333,"date":"2019-05-09T14:41:40","date_gmt":"2019-05-09T12:41:40","guid":{"rendered":"https:\/\/www.go-fair.org\/?page_id=4333"},"modified":"2021-05-04T09:46:51","modified_gmt":"2021-05-04T07:46:51","slug":"personal-health-train","status":"publish","type":"page","link":"https:\/\/www.go-fair.org\/implementation-networks\/overview\/personal-health-train\/","title":{"rendered":"Personal Health Train"},"content":{"rendered":"

Active GO FAIR Implementation Network
\n<\/strong>The undersigned represent major public and private stakeholders in health, healthcare and biomedical research, who are currently developing the \u2018Personal Health Train\u2019 (PHT). This is a distributed infrastructure that enables the use and reuse of health data for the benefit of individuals and society. The PHT aims to advance health, healthcare and biomedical science through a shared infrastructure to support data management (healthcare data, health & lifestyle data, and biomedical research data), data analysis, and medical decision making. The PHT is a GO FAIR Implementation Network (IN). This manifesto is a formal statement of the principles guiding PHT development.<\/p>\n

Main purpose and objectives
\n<\/strong>We recognise the increasingly important role of data in supporting professionals to bridge the gap between research and health care delivery, citizens navigating their own health and well being, and researchers to develop new methods in the prevention and treatment of disease. The PHT paradigm enables researchers to leverage the fragmented data resides in medical centers and repositories. It provides a technical, social, legal and ethical for data-driven decision making in medicine. It empowers citizens to have control over their own data, to partner with healthcare providers in medical decision making, and to support citizen-initiated research. It respects the autonomy and privacy of citizens and implements important aspects of responsible data science.<\/p>\n

The PHT IN is an international network, but does also have individual national chapters<\/a> that reflect needs on the national or regional level.<\/p>\n

Targeted Objective for the IFDS covered by the PHT IN
\n<\/strong>The main goal of the PHT IN is a set of standards, guidelines, specifications and reference implementations of the core components of the PHT that will allow independently developed implementations to be interoperable. \"\"<\/span><\/strong><\/p>\n

Manifesto<\/strong><\/p>\n

Download the manifesto here<\/a>.<\/p>\n

Contact
\n<\/strong>Andre Dekker<\/a>
\nOya Beyan<\/a>
\nOliver Kohlbacher<\/a><\/p>\n

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National Chapter<\/strong><\/p>\n\t\t

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\n\t\t\t\t\t\t\n\t\t\t\t\t\t\tPersonal Health Train, German chapter\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/h4>\n\t\t\t\t<\/div>\n\n\t\t\t\t
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Contact
\n<\/strong>Oya Beyan<\/a><\/p>\n

Workshop reports<\/strong><\/p>\n